Wedding Bands in Ireland help raise fund for “A better live for livie”
Wedding bands from the Wedding band Association of Ireland have come together to help raise funds for “A better live for Livie”
Over 70 + Wedding bands perform a classic rendition of Bill Withers song “Lean on Me”. Please scroll down to read Livie’s story and help donate TODAY!
Little Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. There is no cure and Livie has its most severe type. Livie’s muscles used for activities such as crawling, walking, sitting up, moving her head, and even swallowing and breathing, are becoming progressively weaker and shrinking. Without any treatment, little Livie’s condition would continue to deteriorate and it would be unlikely that she would live past her 2nd birthday.
There is hope and with a once-off gene therapy called Zolgensma! This treament is currently only available in USA. It costs approximately US$2,100,000. We are against the clock as Zolgensma is only available to children under the age of two years.
So please please HELP US raise funds and reach the target! We’re almost there